We were in church, my Christina with Down syndrome was still in a baby carseat, and that little boy couldn’t have been older than four. I had no idea what he was talking about and was still in my deep dark pit, grieving my child’s permanent condition. I looked at Christina, and my tears were blinding me from being able to see ALL the goodness and beauty she had. All I saw was gloom and doom. I saw slanted eyes, which are a typical feature of Down syndrome.
A few days later we had a Pediatrician appointment, and the doctor pointed out that ring in her eyes, and told me that this can be a typical feature in children with Down syndrome. They are called Brushfield spots. They are small white spots around the iris and occur in 37% – 78% of individual with Down syndrome.
When our doctor gave me the technical and medical definition of the Brushfield spots, my thoughts went to that little boy in church.
Here was a little four year old boy who saw Christina’s ring in her eyes, and he loved her eyes, he saw sparkling stars. I felt ashamed, embarrassed and angry at myself, because I saw gloom and doom and it never occurred to me to look deeper and see ALL that was good.
I saw a diagnosis and the little boy saw sparkling stars!
“I love her eyes.”
Happy Valentine’s Day.